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News Section: Community Spotlight



Community Spotlight: Prader-Willi Syndrome Association to Host Fundraising Event

Published Friday, December 6, 2013

BRADENTON – The Prader-Willi Syndrome Association (USA) will be hosting a “Party For A Purpose II” Holiday Gift/Quarter Auction fundraising event on Tuesday December 10, 2013. This event will be held at the Gold Coast Distributing Facility from 6:00 pm – 9:00 pm .The fundraising event will include a Happy Hour, Holiday Gift shopping with over 20 local merchants and a Quarter Auction.

 

Door prizes and giveaways will be included. Proceeds of this event will help promote and fund research, provide education, and offer support to enhance the quality of life of those affected by Prader-Willi syndrome as well as support the fight against childhood obesity. Sarasota, Florida is home to the national headquarters of the organization. For more information email vvance@pwsausa.org or call 941-487-6723.  

 

Tickets for entry are $15, which includes one Drink, Appetizers and one Auction Paddle. For tickets go here.

 

What is Prader-Willi Syndrome?

 

Prader-Willi syndrome is a complex genetic disorder that typically causes low muscle tone, short stature, incomplete sexual development, cognitive disabilities, problem behaviors, and a chronic feeling of hunger that can lead to excessive eating and life-threatening obesity.

 

It is estimated that one in 12,000 to 15,000 people is born with PWS. Although considered a "rare" disorder, PWS is one of the most common conditions seen in genetics clinics and is the most common genetic cause of obesity that has been identified. PWS is found in people of both sexes and all races.

 

What is the Prader-Willi Syndrome Association?

 

The Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome. PWSA (USA) is the largest support, research, and advocacy organization for people and families living with PWS in the United States.

 

For information about Prader-Willi syndrome or how to get involved, please call 1-800-926-4797.

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